Tuesday, February 3, 2015

Improvement

Moving out of PICU with help from RN Kerri
Yesterday the EVD drain from the back of Mark's head was removed, it had been used to help him flush his CSF and clear it of blood while also allowing him to replenish it and restore normal cranial pressure.

Last time we did this, stitching the site was traumatic and painful, so this time the staff was careful. They first set him up with Percoset and Fentanyl, but he remained lucid. After bumping him on both of those and then adding some Ketadine, he finally admitted to feeling "a little insane" and said he saw floating particles....lol.

A nurse asked the normal questions, where are you, what day is it, etc. He still got them all correct. Was it enough? I asked him to identify the 5th planet. Pause, then "Jupiter". Count by 7's. Rapid-fire "7 14 21 28 35 42 49 56 63 70 77 84." What's the roman numeral for 17? Pause, then "XVII". Tell me about the Boston Tea Party. He got the high points about taxation protests, the East India Company, the tea dumped into the Boston Harbor, and some colonists dressed as Native Americans,

Seriously, kid? The nurses were...well, flabbergasted. They gave him one more bump on the Ketadine, and he abruptly stopped talking. Finally! Still, he was starting to talk coherently again before they even had time to put the two stitches in.

We were supposed to move out of the PICU after that and were preparing to do so, but his MD decided at the last minute to keep us in there one more night for observation. However, at about 5am we were advised that the PICU had abruptly filled to capacity overnight. As one of the "best" cases in the PICU, we were being moved out to make room for kids sicker than Mark.

We are now on the 8th floor, the top floor where teenagers usually are. All the cool stuff is up here, like a mini theater, and a gaming room. We now have our own shower, and Mark is completely untethered except for the pulse oximeter on his toe.

Mark is still having some mood swings, mainly tied to his meds, but he and Wendi had a great night last night, cracking up to Tim Hawkins videos on YouTube. He ate a full breakfast this morning, and at the moment he and Wendi are napping hard. As soon as this is posted I am going to join them.

Just had a wonderful visit from Amma Jessie from St. Anne's in Washougal, she dropped off a care package for Mark. And upon returning to the room I found a note from PICU RN Bonnie, who stopped by to check on Mark on her day off but found everyone asleep. The staff here is so very amazing.

If you want to stop by in the next few days, we are now in room 817. Thanks for your prayers, and thanks for reading.

15 comments:

  1. Steve and i laughed SO HARD! I always resisted anesthesia ... until recently. Mark has a fierce intellect - love the man!

    By Peggy & Steve Coquet — Feb 5, 2015 10:59am

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  2. Dear Frank and Wendi,
    Although I am on Facebook, I'm not really "on Facebook" that much so I just now have learned of Mark's tumor and surgery. I went back and read all of your Caring Bridge posts....Mark is truly an amazing young man ---no doubt, a product of good genes and great parenting. I just wanted to let you know that you will ALL be in our prayers!! Sending love and positive thoughts your way and asking God for a full and complete recovery for your precious son!

    By Beth & Eric Hillman, from St. John's in Duluth. — Feb 4, 2015 8:13pm

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  3. I'm so glad to hear things are going well! You guys are in my thoughts every moment...this is a tough time for all of you and I think you guys are handling this beautifully! Mark is such a special little boy and I hope he will be up and running soon. :) Keep up the good work Mark!

    By Dawnya — Feb 4, 2015 12:58pm

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  4. I will see if Mandy has time to bring me by the day after tomorrow. I can't come yet cuz I injured my right hand yesterday and can't unfold two of my fingers so I can't even take a shower. Grrr. But as soon as my hand is healed I want to come see mark. I will let u know when my hand is better. I'm very glad for this good news u posted about him!!! Ptl!!!! I love u mark!

    By nancy — Feb 3, 2015 9:36pm

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  5. Hey Mark!!! We have been thinking about you and praying for you everyday!! We are so very proud of you and can't wait to have you back at CC. We were thinking of comming to vist, but unfortunately, Izzy, Maria, and I got the flu! So, we will have to keep praying for you from home! Keep up the great attitude. You are quite a witness for God's love, endurence, wisdom, and sence of humor!!!! Tell your parents that we miss them too and look foward to seeing them as well!!
    Keep fighting kiddo!! You will be playing outside soon!
    We love you very much,
    The Honsowetz family!!!!

    By Catalina Honsowetz — Feb 3, 2015 9:07pm

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  6. If I could love this more than infinity I would! I am so glad Mark is doing better and that he has a roomier room and more cool stuff around him to do. It has been well documented that red-heads need more anesthetic and it wears off faster, however, Mark IS one REALLY smart young man!! Tons of love!!

    By Aunt Karen — Feb 3, 2015 8:35pm

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  7. Mark is truly amazing, but frankly, so are you and Wendi! Under the most horrific circumstances, you and your family are holding up like warriors! And to take the time to post all the updates as you do. Nothing short of amazing. Although not there in the flesh, I'm certainly there in spirit, cheering Mark (and U 2) on !! Many hugs...

    By Johnny B — Feb 3, 2015 4:41pm

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  8. Mark you are the most incredible kid! I can't believe that I have the great good fortune to be your grandma! I'm glad you are down to only one tether and that there is cool stuff on your floor. I hope you get to explore it soon. I love you very much.

    By Love, Grandma Crook — Feb 3, 2015 4:34pm

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  9. As soon as I know I'm healthy (not sure if I'm battling a cold or allergies), we'd love to come visit! Love to hear all the good news. Hugs to you all!

    By Christine Lawton — Feb 3, 2015 2:54pm

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  10. JJ and I will stop by Thursday late 3:30ish as long as we are both still well and Mark is up to it. ;-) Glad he is out of PICU.

    By Leann — Feb 3, 2015 2:43pm

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  11. btw, Mark ... I cant skip count by 7s that high and i am a professional tutor AND not medicated. Well done Sir, well done :)

    By Angel Slot — Feb 3, 2015 2:27pm

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  12. Thinking of you all, praying for you all, miss you all, every day. Thanks for the updates. xoxoxo

    By Erin Johnson — last edited Feb 3, 2015 2:27pm

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  13. Ya know... I must say I am quite touched by this Nurse Bonnie...I think our family would like to send her a little something as a thank you for how special she is has been to Mr Mark. My guess is she is just as attentive to all the amazing kiddos in the department. What a true blessing! I wonder if just sending it to the hospital would find her. Can you find out her last name for us? I know you guys are busy so if not, we will be detectives and figure it out on our own :) Praying for good rest, peace in the moments, and comfort in the pain.

    By Angel Slot — Feb 3, 2015 2:26pm

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  14. All your kids are amazing. He needs to see Sons of Liberty if he hasn't already. Brian was watching it and at first I thought it was something else, so missed the first one and 1/2 of the second, then started paying attention, watched all of the third, DVR'd it so I can watch the whole thing.
    So happy to hear he is improving and is now in a room with a shower. We will continue the prayers and keep our Agape group updated. You all are getting prayers from 100's of people here. God must be thinking, "wow what a awesome kid this is with all these people praying for him". We agree. Hugs to you all, and looking forward to seeing the new addition and giving him his present.

    By Cooki — Feb 3, 2015 2:26pm

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  15. If Brain Surgery makes you that smart maybe I should have one!!!! Seriously it's a delight to hear of his good progress. Thanks for keeping us informed. Party on, Mark!!

    By Liz Phelan — Feb 3, 2015 2:21pm

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