|Wendi, Emily and Gabriella|
I knew she had a tumor in her brainstem, but her mom had said it was non-cancerous and a grade II, so I had assumed the prognosis was hopeful. She is a little doll, and she has taken to Bella and I, evidently asking for me repeatedly during the day when we're not "home" (we were gone from 8am to 7 pm today).
Tonight I learned from her mom that she has what's called a Diffuse Intrinsic Pontine Glioma, DIPG for short, and although they are here going through radiation, the average prognosis is 6 months to a year. We were talking about how hard it is to look at our children, who seem perfectly healthy on the outside (this little girl is in the same week of treatment as Mark and hasn't lost any hair), laughing and playing, and yet they are seriously ill. We talked about all of the things I wrote about last night. We talked about our worries and how when she spoke to Make a Wish about their Disney trip, she'd been told that the foundation understood from the doctors that this is a rush situation so the turnaround time will be fast.
|Emily and Gabriella, in one of the movie lounges at Holcombe House|
What does that even mean, she asked, when an organization like Make a Wish says it's a rush. How can that be? I'm so sad for them, well as sad as I can be right now. I can't imagine. And at the same time she started crying for me because I'm so far from my family. And this is how we help carry each other through: we carry a piece of each other's pain with us.
Please pray for them. The little girl's name is Emily.