Friday, January 30, 2015

Friday Movie Night

Who are we kidding? When your eyes are mostly uncooperative, your stamina is low, and your frustration is peaking, every night is movie night. Presently, it is The Lego Movie.

Mark is tired, his reservoir of patience is pretty dry. The staff knows he's a charmer, but the charm is on minimum right now. Many questions are answered with just a shrug.

I just want to carry him away to a happy place and make it all go away. This is a helpless place to be for a parent.

Wendi went home to rest and recover, so it is just Mark and me for now. His gradual recovery is slower than he'd like, contributing to his discouragement. On the positive side, after a brief recurrence of nausea, he's eating a little better now. He also had one of his remaining two IVs removed, so that's one less tether.

Hopefully there is more tangible progress tomorrow to help lift Mark's mood. All your offers of support, prayers, and so much assistance from our friends with transportation and childcare, has been amazing and leaves us at a loss for words. God bless, and please keep the other families and staff here at the PICU in your thoughts.


  1. I wish I could be there to help and love you. Your posts are both inspiring and heart wrenching. I love you little brother and my dear nephew Mark.

    By Susie — last edited Feb 2, 2015 1:37am

  2. I am praying for your complete recovery and for your family. God bless you!
    A fellow parishioner,

    By Christine Peters — Jan 31, 2015 5:34pm

  3. Hope Mark gets some rest for a while now. You too Frank!

    By Leslie Alexander — Jan 31, 2015 3:04pm

  4. Prayers everyday! Mark, Who is going to win the Super Bowl?

    By Ashley Bright — Jan 31, 2015 8:31am

  5. You're doing a great job Mark! Keep up the good healing there, it will come, all that good rest is making you better and stronger each day.

    By Tristina Yarzombek — Jan 30, 2015 10:18pm

  6. I will pray for him to improve greatly very soon and for him to feel better physically, mentally and emotionally. I want him to finally feel happy and normal. I love my nephew very much. I pray that somehow you and Wendy can get enough rest too. I love u jamie. God bless and comfort you all.

    By nancy — Jan 30, 2015 9:11pm